Keep Calm . . .

2nd opinionA whirlwind of activity…

We learned on June 7, that there is a bit of new cancer growth on Bud’s spine. The Rochester doctor gave us her plan. Friday, we went to NYC, Memorial Sloan Kettering, for their opinion and plan.

Yes, there is a little bit of new growth, which the radiation oncologist wants to radiate. (Correction: a previous site — the spine — shows additional growth. This is not a “new site.” Sites radiated with “curative doses” of radiation rarely have additional growth. Bud’s original dose was a palliative dose, to alleviate his severe back pain.) He is confident that it can be eradicated without a great deal of risk to the spine, even though that location has been radiated once before. So we will proceed with making plans for a biopsy of that growth and radiating it at the curative dose level.

Earlier in the month, there was some evidence of something unusual happening in the brain. The Rochester doctor believes it is radiation effect and not new cancer. The NYC radiation oncologist also thinks this may be the case. There is a specialized MRI that can tell him for sure. Bud will be having that done on July 2. Given the level of confidence that both doctors have that this is not new cancer, and given how the symptoms have subsided after initiating steroids, we are believing this too unless the coming scan shows otherwise.

And likely, we will stay on the current medication for some time longer. It has a typical “shelf life” of 12 months. It has worked for Bud for about 20 months. (The NYC doctor feels that the new cancer growth is a result of radiation failure, not med failure.) Even if it was med failure, once the location is radiated, then there is no rush to change meds if the activity in his brain is not cancer.

As long as the current medication is working, we are advised to stay with it. Another consideration is that each med has a “shelf life” and we don’t want to start the clock on a new one prematurely.

In this cancer journey, we can see God writing a story and molding lives. Along the way, we think of so many things for which to be thankful. One of the foundational things is advice from a family member early in the process. She encouraged us to go to the best hospital in our region for a second opinion. It was excellent advice two years ago; and it proved to be excellent advice at this crossroad as well.

Originally, Bud thought that we would just go with the advice of our nearby doctors and not incur the expense for second opinions. But it is amazing what different doctors will see, know, and suggest. This was well worth the effort and money involved.

The second opinion infused new hope into our journey, as I’m sure some of you can hopeunderstand. If you don’t already know, “hope” is a powerful word.

Thank you for your continued prayers.

 

being  I am currently on “break” from school. My courses run in eight-week sessions with a two week break between. I had grandiose plans of getting so much done, but today is the last “official” day. And nothing is done.

No laundry, no changing my textbook/study center, no closet cleaning, no swapping out winter clothes, no basement hoeing, no plant planting. No “thing” is done. I didn’t actually hope to accomplish all of that, but I thought I would get to one or two things on the list.

Even though I sound discouraged, because I do like a tidy home and a lovely yard, I am not. All these things will get done when they are supposed to, if they are supposed to. You might be walking up my porch steps as I put away the last pair of underwear or wash that last pan, but “just in time” works. If November comes and I pull a sweater out of the dresser in my bedroom, where it has been for the entire summer and fall, then I’d say I’m ahead of the game.

So if I accomplished none of these “things” — where did my break go?

Two events come to mind. One event was a “must do.” Our lives are made up of those. Not because others dictate to us, but because we understand the importance for ourselves of doing them. This “must do” was attending my uncle’s funeral. Nearly all of us understand the “must do” component — while you want to support your family and be there for the event, the “must” part comes because no one likes facing death. But it is part of our lives and it is a fact of our history.

The other event was only a “must do” in that it was time for us to get away. But this was mostly spontaneous, especially in that we didn’t actually plan where we were going and just decided along the way. We didn’t actually book hotel rooms, either. Well, I guess that’s not so unusual for us. We just “hope” it works out and we might find a deal. My poor kids can tell you how this usually worked when traveling long distances!

So we ended up enjoying four nights and five days of spontaneity. Each night, the hotel room hunt was successful. The capstone night was finding the Common Man Hotel and Restaurant in Claremont, New Hampshire. What a lovely place. And we were offered a discounted rate, besides!

We didn’t have any particular agenda; no schedule to keep; no people to meet. So we drove, relaxed and rested.

But always present was one extra visitor that we didn’t invite. It was “that guy,” Cancer. He’s always with us these days. Though the doctors have indicated he is not active, neither do they say he is gone. And sometimes, we are reminded that he invaded our lives because of treatment side effects.

So in our wanderings, he was there. But because we were able to cut out other stresses, the time together was refreshing and brought us closer together. I recently heard a friend say that she is “living” with cancer — we are still learning how to do that.  It is a challenge to teach yourself to live in the moment; knowing that cancer wants to limit the moments. Our journey has been somewhat calm, so far, compared to others we have known. We are thankful for that and it reminds us to pray for those who face very hard treatments and prognosis. Our long weekend resulted in some much needed rest, introspection, conversation and rejuvenation.

So those things that I thought I’d get done during break don’t matter. Life isn’t about “things” — it is about moments. Our wonderful, happy, spontaneous moments this past week — that was living.

Here’s what we got to do!
Friday morning – rescheduled MRI in Rochester;
Friday night – Syracuse (NY) Mets ball game – Tim Tebow at bat x3 ;
https://www.milb.com/syracuse

Saturday morning – breakfast in Syracuse with Titus and Abigail  
http://www.thegemdiner.com/menu/ – “World Famous” Gem Diner;

From here I thought we were going to Boston, but the traffic dissuaded us.

Saturday afternoon – stopped in to see Bud’s Dad;
Saturday night – Dinner at Lizzie Keays (Bud’s sister’s restaurant in Warrensburg, NY)
http://www.lizziekeays.com/

Visit with friends in Thurman, NY;
Sunday morning – church at New Hope Church – Queensbury, NY;
http://www.sharingnewhope.org/ — excellent place to worship!
Sunday – Lunch with Bud’s Dad – Bud’s locally famous spaghetti;
Sunday afternoon – Andover, VT;
Sunday night — The Common Man Inn and Restaurant in New Hampshire
https://thecmaninn.com/ – a must do for you!;

Monday – Andover, New Hampshire
AND Andover, Maine
Had a great late lunch here:
https://www.facebook.com/AndoverGeneralStoreandDiner/;
Tuesday – Joshua Chamberlain Museum in Brunswick, Maine – Bud’s “History fix” – a bit of history about a Civil War general.
http://pejepscothistorical.org/chamberlain

and Home!