For most of June, Bud and I spent our time in New York City.
The purpose of our visit was to obtain radiation treatments on the tumor in his lung. How did we arrive at this decision?
In May, the side effects of the clinical trial would not diminish within the protocol’s stated timeframe so the doctors removed him from the trial. At that point he continued with the “targeted therapy” drug according to the plan. However, way back in October we had gone to Sloan Kettering to obtain a second opinion on our treatment plan. During our visit with Dr. Wu, Bud asked him at what point we should consider radiating the tumor.
Dr. Wu advised us to go on the clinical trial and stay with it as long as there was progress. At such a time that the clinical trial was no longer a good option, then he would suggest radiating the tumor as well as any other sites that had not previously been radiated. On Tuesday, May xx Bud called Dr. Wu once again to see if he thought this would be the time to implement that advice from October. Dr. Wu called back immediately. By Friday we had an appointment to start the preparation for a simulation that would lay the groundwork for treatment.
Simultaneously we were working with the doctor in Rochester, asking all the same questions and seeking his advice as well. In all of the conversations and appointments a great deal of information was given out and at times it seemed very confusing. We saw clearly how practical it would be to get treatment in Rochester and the idea of doing this in NYC was overwhelming, primarily for me. We didn’t have a clear direction.
Finally, during a conversation with Dr. Wu Bud asked him the exact question that he posed to the doctor in Rochester. “What is the goal in radiating according to your plan?”
I will put both answers side-by-side:
Rochester: The goal is to get as much of the cancer as possible without hurting you. The idea is to get you as much time as possible.
Dr. Wu: I believe we can get all of the cancer. And the goal is to have you cancer-free, at least for a long time.
God does make the path clear when you ask Him to. Given those choices, Bud was drawn to the response that offered hope.
So, that response began the whirlwind lifestyle that characterized most of our June. Bud had the simulation done and went through 15 treatments. We were told that he could expect to feel some discomfort in his throat area and may become fatigued, but that hasn’t happened. The first set of progress scans will be in the two-three months after the last treatment. In the meantime, Bud has resumed the “targeted therapy” drug.
Throughout this process, we have been blessed with your prayers and best wishes. And we are especially thankful to our church family for addressing our lodging issues in New York. God has been apparent through the entire month, leading and helping us through all things.
Bud often says “I don’t want to get ahead of God’s story . . .” This journey truly is God’s story and we don’t know what He has in store for the ending. It has never been Bud’s goal to cling to life against God’s plan. (There’s an interesting Bible account about that which he’d be glad to share with you!) But it has been his goal to “press on.” He presses on doing those things that God wants him to do; and he sets his sights toward that “prize” which is not to be found in this world, but in heaven.
That said, we invite you to continue to watch and see what the Lord will do!